Another Spectrum

Personal ramblings and rants of a somewhat twisted mind


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WHAT IS AUTISM?

In yesterday’s post I quoted from and linked to an article that argues that the pathology paradigm is a cultural value judgment and not a objective scientific conclusion. So if autism is not a disorder, what is it? Most online scientific and medical literature still use the pathology paradigm, as do most sources within the autism community(a) and so are of little help when looking at what autism really is.

To gather a more accurate description one needs to look at the literature from the autistic community(b). The “problem” with following this course of action is that most descriptions are based on personal experience and are therefore subjective in nature rather than being objective in a scientific vein.

(a)Autism community: allies of autistic people; caregivers of autistic people; extended family of autistic people; professionals who work with autistic people; anyone who thinks they know anything about autism.
(b)Autistic community: autistic people.

And here’s why it’s a problem: The experience of every autistic is different. The picture I paint to describe what autism is for me will be different from the picture painted by another autistic about their experience. Some of my experiences might event contradict those of another autistic. Many non-autistic people have an issue with this. They see inconsistencies, discrepancies that they interpret as “nonsense”, “bullshit”, “you’re making it all up”. And we’re the ones who are supposed to have rigid forms of thinking??

Comprehensive descriptions that include autism in all its variations and follow the neurodiversity paradigm are few and far between, but I find the following from the NEUROCOSMOPOLITANISM blog one of the better descriptions of what autism is.

WHAT IS AUTISM?

Autism is a genetically-based human neurological variant. The complex set of interrelated characteristics that distinguish autistic neurology from non-autistic neurology is not yet fully understood, but current evidence indicates that the central distinction is that autistic brains are characterized by particularly high levels of synaptic connectivity and responsiveness. This tends to make the autistic individual’s subjective experience more intense and chaotic than that of non-autistic individuals: on both the sensorimotor and cognitive levels, the autistic mind tends to register more information, and the impact of each bit of information tends to be both stronger and less predictable.

Autism is a developmental phenomenon, meaning that it begins in utero and has a pervasive influence on development, on multiple levels, throughout the lifespan. Autism produces distinctive, atypical ways of thinking, moving, interaction, and sensory and cognitive processing. One analogy that has often been made is that autistic individuals have a different neurological “operating system” than non-autistic individuals.

According to current estimates, somewhere between one percent and two percent of the world’s population is autistic. While the number of individuals diagnosed as autistic has increased continually over the past few decades, evidence suggests that this increase in diagnosis is the result of increased public and professional awareness, rather than an actual increase in the prevalence of autism.

Despite underlying neurological commonalities, autistic individuals are vastly different from one another. Some autistic individuals exhibit exceptional cognitive talents. However, in the context of a society designed around the sensory, cognitive, developmental, and social needs of non-autistic individuals, autistic individuals are almost always disabled to some degree – sometimes quite obviously, and sometimes more subtly.

The realm of social interaction is one context in which autistic individuals tend to consistently be disabled. An autistic child’s sensory experience of the world is more intense and chaotic than that of a non-autistic child, and the ongoing task of navigating and integrating that experience thus occupies more of the autistic child’s attention and energy. This means the autistic child has less attention and energy available to focus on the subtleties of social interaction. Difficulty meeting the social expectations of non-autistics often results in social rejection, which further compounds social difficulties and impedes social development. For this reason, autism has been frequently misconstrued as being essentially a set of “social and communication deficits,” by those who are unaware that the social challenges faced by autistic individuals are just by-products of the intense and chaotic nature of autistic sensory and cognitive experience.

Autism is still widely regarded as a “disorder,” but this view has been challenged in recent years by proponents of the neurodiversity model, which holds that autism and other neurocognitive variants are simply part of the natural spectrum of human biodiversity, like variations in ethnicity or sexual orientation (which have also been pathologized in the past). Ultimately, to describe autism as a disorder represents a value judgment rather than a scientific fact.

What Is Autism? – NEUROCOSMOPOLITANISM, March 1, 2014


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They Were Wrong — Speaking of Autism…

Too often, those who are neurodivergent are written off and denied the opportunity to shine. It takes an exceptional amount of determination and good fortune for most autists to break through the barriers that society, in its ignorance, places in front of them. Success stories are rare, not because it’s an innate characteristic of autism but because society has decided to write off autists as failures, rejects, and broken, even before formal education commences. So I rejoice when a kindred spirit is able to demonstrate how wrong the system is. Here is the success story of one autist who, with just the right amount of determination, support and happenstance, has proven that the system and society are indeed wrong.

Congratulations Quincy!!

Well, folks, it’s official. I am a high school graduate! Well, technically I’ve been “graduated” since May, but the school held the actual ceremony this week. Despite the delay, I walked across the stage and got my diploma last Thursday on the school’s football field. I think that for everyone a high school graduation is […]

They Were Wrong — Speaking of Autism…


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Ways society gaslights and stonewalls autistic people #4

Taken from 50 Ways Society Gaslights and Stonewalls Autistic People. Visit Neuroclastic if you prefer to see all 50 ways in one bite. Otherwise, expect to see one more way in which we are gaslighted each day over a period of seven weeks.

Autistic people, adults and children, are infantilized, gaslighted, and manipulated regularly by society– individuals and institutions.

Gaslighting is a form of psychological manipulation that seeks to sow seeds of doubt in a targeted individual or in members of a targeted group, making them question their own memory, perception, and sanity. Using persistent denial, misdirection, contradiction, and lying, it attempts to destabilize the victim and delegitimize the victim’s belief.

Wikipedia

Note: Some of these may overlap, and some may not fit squarely within the definition of gaslighting; however, all contribute to the way in which society functions like a narcissistic parent with regards to how autistic people are perceived and treated.

4. ABA “therapy”

When ABA therapists claim that ABA therapy for 40 hours is not exhausting for small children because it’s “just play,” when social play can be beyond-exhausting over extended periods of time for autistic kids.

Neuroclastic

Just because Autistic kids often don’t play in a way non-autistic kids do doesn’t mean they’re not playing. And by being forced to “play’ in a way non-autistic kids do – especially social play – it is no longer play. It becomes hard work and eventually beyond endurance. Such treatment of a typical child would be considered abuse, but somehow it’s okay to subject autistic kids to this sort of treatment.


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Ways society gaslights and stonewalls autistic people #3

Taken from 50 Ways Society Gaslights and Stonewalls Autistic People. Visit Neuroclastic if you prefer to see all 50 ways in one bite. Otherwise, expect to see one more way in which we are gaslighted each day over a period of seven weeks.

Autistic people, adults and children, are infantilized, gaslighted, and manipulated regularly by society– individuals and institutions.

Gaslighting is a form of psychological manipulation that seeks to sow seeds of doubt in a targeted individual or in members of a targeted group, making them question their own memory, perception, and sanity. Using persistent denial, misdirection, contradiction, and lying, it attempts to destabilize the victim and delegitimize the victim’s belief.

Wikipedia

Note: Some of these may overlap, and some may not fit squarely within the definition of gaslighting; however, all contribute to the way in which society functions like a narcissistic parent with regards to how autistic people are perceived and treated.

3. Empathy

When they claim to have empathy and that we don’t, but then only measure empathy in NT ways like eye contact or understanding NT behavior.

Neuroclastic


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Ways society gaslights and stonewalls autistic people #2

Taken from 50 Ways Society Gaslights and Stonewalls Autistic People. Visit Neuroclastic if you prefer to see all 50 ways in one bite. Otherwise, expect to see one more way in which we are gaslighted each day over a period of seven weeks.

Autistic people, adults and children, are infantilized, gaslighted, and manipulated regularly by society– individuals and institutions.

Gaslighting is a form of psychological manipulation that seeks to sow seeds of doubt in a targeted individual or in members of a targeted group, making them question their own memory, perception, and sanity. Using persistent denial, misdirection, contradiction, and lying, it attempts to destabilize the victim and delegitimize the victim’s belief.

Wikipedia

Note: Some of these may overlap, and some may not fit squarely within the definition of gaslighting; however, all contribute to the way in which society functions like a narcissistic parent with regards to how autistic people are perceived and treated.

2. Late blooming

Not acknowledging that many of us grew up in environments that weren’t conducive to fostering our talents ended up as late bloomers, then assuming we’re Né’er-do-wells or we’re unmotivated or unambitious. We just haven’t bloomed yet, and it’s a profound difference… but when we do bloom, look out.


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Ways society gaslights and stonewalls autistic people #1

Taken from 50 Ways Society Gaslights and Stonewalls Autistic People. Visit Neuroclastic if you prefer to see all 50 ways in one bite. Otherwise, expect to see one more way in which we are gaslighted each day over a period of seven weeks.

Autistic people, adults and children, are infantilized, gaslighted, and manipulated regularly by society– individuals and institutions.

Gaslighting is a form of psychological manipulation that seeks to sow seeds of doubt in a targeted individual or in members of a targeted group, making them question their own memory, perception, and sanity. Using persistent denial, misdirection, contradiction, and lying, it attempts to destabilize the victim and delegitimize the victim’s belief.

Wikipedia

Note: Some of these may overlap, and some may not fit squarely within the definition of gaslighting; however, all contribute to the way in which society functions like a narcissistic parent with regards to how autistic people are perceived and treated.

1. Sensory differences

Telling us that our sensory differences are “no big deal” and that we just need to “be resilient” and learn to deal with it. They assume their brains are the same as ours and assume we can habituate when we can’t, so instead force us to be in awful environments to try to “habituate us” to the stimulus. Which is just further traumatizing us. Thinking they get to decide what is loud, bright, painful, or tastes funny.

Neuroclastic


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Teaching religion

It’s been a while since I touched on topics of a religious nature, so here’s one that’s been on the back burner for a while.

I believe the teaching of religion is important. Not because it teaches what is right or wrong, good or bad, but because it teaches us a lot about the evolution of human thought and morality.

It can help us understand that good and evil, are concepts that change over time. It can help us understand why we value some ideas today that had little value in the past and why we have devalued some ideas that were regarded as sacred in earlier periods. Whether we like it or not, religion has played a significant role in how we have come to understand the world.

To a great many anti-theists and non-theists, bringing these two words, “teaching religion” is like a red rag to a bull. You can almost see their nostrils flare on hearing those words. But does it need to be that way?

For myself, religion is a means by which I can understand what I experience. It nourishes me in a way that other experiences of being human do not. I acknowledge that this is my experience, and what I experience is unique to me. If you wish to call it something else other than religion, that’s fine by me. 

The following video, and the transcript below describe what teaching religion means from a Quaker perspective. Whether or not you agree with the teaching of religion at all, it is not “indoctrinating people in the ‘correct’ way to think in terms of the cosmology or the meta-narratives of religious philosophy”.  Your feedback after watching the video or reading the transcription is very welcome.

Transcript

I am very clear in a public context that I never say, “I teach religion,” because I have learned in my life that that’s a conversation stopper. For most people that I encounter in the United States of America, they hear that as, “I participate in indoctrinating people in the correct way to think in terms of the cosmology or the metanarratives of religious philosophy.”

It couldn’t be further from the truth at a Friends school. That is not what we do. In fact, when I say to people, “I teach religions,” they say, “Oh wow, that sounds cool!” I’ve heard people say when I say I teach world religions, they say, “Oh that was my favorite subject in college, I loved that,” and it’s a conversation opener. And that’s what we’re doing at Friends schools, we’re opening the conversation, we’re not closing it.

For me as a teacher, my goal is to create an energized, safe space for students to get in touch with their own ideas but to encounter the ideas of other people in the room and other people from other times and other spaces, either through a text or through the internet or some other device that I share and I want them to be alive in the present with what’s real for them. 

Quaker Ethos

Quakerism is a wonderful container to have conversations around the edges. I often say that Quakerism is a great religion for people who are entering religion for the first time, or for people who are leaving religion. So we have a lot of people who are excited about Quakerism because they’ve thought of themselves as agnostics or atheists and then they encounter this tradition that permits that possibility but also invites exploration of the mysterious and doesn’t block out experiences of transformational or paranormal possibilities.

And then there are other people who have come from very doctrinal or creedal religions and they have felt oppressed or controlled by those traditions and Quakerism gives them freedom. Great, welcome!

So we have a tremendous mix within our community, and that’s a mix that we also have in our classrooms because at Friends schools, the majority of people in the room are not Quaker, and there is no expectation that they should be—and more often than not, the teacher is not Quaker either. So what we’re doing is we’re having a conversation that is possible because of the Quaker ethos of acceptance, tolerance, universality, and openness to the unknown.

Creating Safe Discursive Space

This is not a situation where there’s a catechism or a planned method of instruction so that you get the right answers or the right information. It’s quite opposite, actually. What we are doing at a Friends school is we are creating safe, discursive space for people to ask into the sublime, into the mystical, into the beautiful, into the mysterious. And it turns out that everyone has had that experience.

We’ve all had dreams. Are dreams real? Are dreams religious? Are some dreams religious? Are no dreams religious? In fact, what does it mean to be a person who is in touch with a dimension of reality that we can’t measure or see? It means to be fully alive, so let’s talk about that.

Exploring our Identities

And at the same time, I am very happy bringing in the language of scientific cosmology and what some people call atheism because that belongs in the room as well. So when I tell them that when I was young, I identified as both Quaker and atheist, I see their eyes get wide, like, “Oh that’s a thing? Like, I’m allowed to be that?” Sure! What are you, what’s your truth?

And then suddenly I hear a polyphony of different identities around the room and suddenly now we’re talking, because, “Well I’m Jewish and Christian?” Well, theologically speaking, how can you be both? Well it doesn’t matter, let’s not interrogate that question. Let’s honor that that’s your truth and let’s talk about what that means to you. Which stories speak to you? Which parts of those traditions have meaning for you personally, and why is it important that you honor both of those traditions when you were asked what religion are you? And let’s welcome all of that and stumble forward.

I want students to leave my class saying “That was fun!,” because it is fun actually. It’s fun to realize that you are having some dimension of reality that you know is true validated by somebody else and then you find out that there are rich traditions that offer different narratives, different names, different colors, different stories, different energies to exactly the stories that you personally have had. Wow, that’s cool!

Now turn to the person next to you and talk about your experience and listen to their experience and notice if there are similarities or differences. And now let’s come back to what we were talking about. Maybe we have a text from the Bhagavad Gita that says something really profound from a couple thousand years ago, and now let’s look at the Gospel of John, or the Gospel of Thomas even! Or maybe we’ll look at something from Deuteronomy and say, “How does this compare to your dream? What do you love?”

 


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“This is what the misuse of the [Autism Speaks] puzzle piece symbol feels like to me; shut up about the positives of autism, we want to medicalize your neurotype and strip away what makes your life enjoyable.” I agree with KALEIDOGRAPHIA 100%

I spent the new year at my cousin’s beach house, overlooking the warm waters of the Southern Brazilian coast. Inside the open plan kitchen/living room, cooled by the chilly ocean breeze, we gathered round for one of our old family pastimes: six pairs of hands, or seven, or eight, depending on who dropped in or […]

via [Reflection] The Final Piece of the Puzzle — KALEIDOGRAPHIA


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I find social events extremely tiring, not because people are unaware of autism, but because people fail to accept autism.

It is World Autism Awareness Day and my autism is making itself known. One of the most frustrating parts of my being autistic is the exhaustion and headaches that follow big events. All that processing, all that sensory bombardment, all that concentration on interactions, and no matter how wonderful and amazing the day, I shall […]

via All the Autism Awareness — Autism and Expectations