Another Spectrum

Personal ramblings and rants of a somewhat twisted mind


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Scary stories

Halloween was a few days ago. It’s an event I ignore. It didn’t exist in Aotearoa when I was growing up and personally I’d be happy if it remained so today. Thankfully, our current home has not been visited for Trick or Treating since we moved here 16 years ago. Perhaps it’s the unlit, tree lined zig-zag path that leads to the front door that puts kids off. Whatever the reason, it means I don’t have to pretend that Halloween is fun.

Halloween has brought up the topic of how folk with aphantasia (the inability to visualise mental images), such as myself, react to scary stories. Apparently we don’t. It might explain why I had no interest in sharing scary stories as a child. According to a Royal Society Publishing article the fear induced while reading or hearing a scary story relies on being able to create a mental image of the situation/event being described. No image, no fear.

The study measured skin conductivity of subjects while being presented with a scary or frightening story such as being in an aircraft as it crashed, or being trapped in a room full of spiders that then begin crawling over you. It’s well established that strong emotions are linked to skin moisture – the stronger the emotion, the wetter the skin becomes, lowering its electrical resistance. The control group showed significant increases in skin conductivity during the presentation of the scary stories but the aphantasiacs “flatlined” showing no change in emotions.

To check whether aphantasiacs lacked emotional responses, subjects were also presented with scary images. Both the control group and those with aphantasia showed identical responses. The study indicates the there is a close relationship between visual imagery and emotions. Both the control group and aphantasiacs presented the same emotional reactions when presented with real images, but only the control group did so when no images were presented as they were able to create the mental image of the story whereas those with aphantasia could not.

Around 2% – 5% of the general population have aphantasia, while it’s estimated that 20% – 30% of autistics are also aphantasiacs. Most people with Aphantasia don’t realise that they have it unless they are tested specifically for it. I only discovered I have aphantasia in my mid 60s – around six or seven years ago. It might go someway to explain why I have difficulty identifying faces –even of those nearest and dearest to me. Perhaps it might also explain why I find little to no attachment to fictional situations, but slightly more so when I see it on a TV or movie screen.

Aphantasia is another one of those neurological differences where those with the condition are frequently described as suffering with/from the condition, in much the way autistics are often described as suffering from autism. If you are guilty of this, just stop it! Neither autism nor aphantasia cause suffering in and of themselves. Any suffering comes from how others disbelieve, devalue, ignore and gaslight the experiences of those with these conditions, and worse when we are punished because others perceive our responses to our experiences as being wrong.


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Harvard University Commencement speech

I have a confession to make. Although I have a rather soft spot for our Prime minister, Jacinda Ardern, I have not voted for the party she represents since the 1970s, and I feel I’m unlikely to so for the foreseeable future. Our Jacinda has just about the right balance of optimism and pragmatism. She has been criticised by some for being too empathetic and kind and that leaders should be powerful and crush the opposition. But I disagree. Shouldn’t the very values we teach our children also be displayed in our leaders? I believe they should.

Earlier today (NZ time), Jacinda delivered the Harvard University Commencement speech for 2022. I have included two Youtube clips of her speech: the first being highlights selected by Guardian News (4:34), and the second being her entire speech (24:29). But first, here are the closing paragraphs of her speech as transcribed by yours truly:

You are, and will always be, surrounded by bias. You will continue to be exposed to disinformation, and over time the noise you are surrounded up by will probably only get worse. And perhaps that is why when your own constitution was adopted, benjamin franklin was asked what had been created and he replied [quote] “A republic if you can keep it”.

If you can keep it. Yes diversity of voice in mainstream media matters. The responsibility of social media matters. Teaching our kids to deal with disinformation; the role we play as leaders, it all matters. But so do you. How you choose to engage with information, deal with conflict; how you confront, debate; how you choose to address being baited or hated; it all matters. And in the overwhelming challenges that lay in front of us, and our constant efforts to reach into the systems, the structures, the power, don’t overlook the simple acts that are right in front of you: the impact that we each have as individuals to make a choice; to treat difference with empathy and with kindness – those values that exist in the space between difference and division, the very things we teach our children but then view as weakness in our leaders.

The issues we navigate as a society, after all, will only intensify. The disinformation will only increase. The pull into the comfort of our tribes will be magnified, but we have it within us to ensure that that doesn’t mean we fracture. We are richer for our difference, and poorer for our division. Through genuine debate and dialogue, through rebuilding trust in information and one another, through empathy, let us reclaim the space in between. After all, there are some things in this life that make the world feel small and connected. Let kindness be one of them.

Jacinda Ardern – Harvard University Commencement speech 2020
Jacinda Ardern receives standing ovation for Harvard speech on gun control and democracy | Guardian News
In full: Jacinda Ardern delivers Harvard University Commencement speech | nzherald.co.nz


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Things ableists say — Yenn Purkis Autism Page

Yenn has some very good points about how ableists treat people with disabilities – often in ways that are infantilising insulting or demeaning. I don’t view myself as disabled, but there are certainly times when society effectively disables me. Unfortunately many fully-abled people don’t realise how ableist their words and actions can be…

I recently had an unpleasant experience where a person gave me a hard time for using the accessible seat on the bus. I need to have two seats to myself due to sensory and proximity issues related to my autism. Apparently – according to this person – I didn’t ‘look disabled enough’ to use this […]

Things ableists say — Yenn Purkis Autism Page


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Odd…

In the United States of America you can own and operate firearms without a licence, but not a whiskey still

In Aotearoa New Zealand you can own and operate a whiskey still without a licence, but not firearms.

Odd isn’t it?


In practice, it makes it virtually impossible to distill your own alcoholic beverages at home in the USA while you can own, operate and trade as many lethal weapons as you desire. Even if you purchase a still for the purpose of distilling water the seller is required to keep a record of the the purchaser’s name and address, and to supply those details to the Bureau of Alcohol, Tobacco and Firearms upon request. So you may receive a visit from them just to check the still is being used for its “intended purpose”.

On the other hand, in NZ you can own, operate and trade as many stills and their components as you desire, and make as much whiskey or other spirits as you desire, provided you do not trade by way of private sale any of the liquor produced. You can also own, operate and trade as many guns as you desire with the proviso that said guns are of the class allowed for on your firearms owner licence, are stored securely, and you sell them only to a person with an appropriate firearms owner licence.

Note that in NZ, personal protection and self-defence are not lawful reasons to be in possession of a gun, even if you hold an appropriate firearms owner licence for the weapon. Currently there is no firearms registration, but that will be phased in over the next few years, thanks to the Christchurch mosque shootings in March 2019.


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Autism: How to be normal (and why not to be)

This being autism awareness month, you’ll probably see me posting more articles about autism than normal. I make no apologies for doing so.

The following heartfelt Youtube video is from a TEDx presentation by a fellow autistic, Jolene Stockman. Her experiences very much parallel my own, apart from learning to drive (I found it easy and enjoyable) and the age at which being autistic was discovered (60 in my case).


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Seeing is believing

Like everyone else on this planet (perhaps with the exception of the previous POTUS) I am not perfect, nor was I born that way. Today I want to focus on some imperfections I was born with. I’m using “imperfections” here in two different ways.

  • Those traits and characteristics that society deems as flaws disabilities, unacceptable or a nuisance to deal with
  • Those traits and characteristics that one feels about oneself that are flaws, disabilities, unacceptable or a nuisance to deal with.

Often times, what one perceives as an imperfection may not be deemed so by society, and of course the opposite is true – what society deems as an imperfection may not be deemed so by oneself.

In my own case an obvious example is autism. Almost certainly, no one in any profession would have considered I was autistic until perhaps the 1990s and the condition became better understood. I wasn’t diagnosed as such until 2010. My family had always been very accepting of my “quirkiness”, but the rest of society wasn’t. I was cajoled, teased, bullied, reprimanded, punished and violently assaulted for being “different”.

I perceive the world differently at many levels compared to non-autistic people, and I may post more on how growing up as an undiagnosed autistic affected my life at another time, but today I want to concentrate on the imperfections of my eyesight and vision, and how those have been perceived by myself and others.

I was born with both myopia and astigmatism although neither myself, family, friends or school teachers realised it. It was finally my music teacher who realised I was unable to read music notation in advance of where I was playing that lead to my first “real” eye examination when I was 12 years old.

Sure, for the previous seven years, I had passed the usual eye test at school where one reads an eye chart at a prescribed distance.

Tests were carried out on the entire class by putting all the students in a line and then taking the student at the front of line through the test. Not being particularly assertive, I usually found myself near the back end of the line. Alternatively, we sat at out desks and were called up in alphabetical order by family name. Either way I was always in the last quartile of the class to be tested.

I don’t recall how far through the chart we were required to go, but I think it was only as far as the line for 20/20 vision. I always passed the test with flying colours. I could rattle off the letters as fast as the best of the class.

The problem was that I couldn’t read the chart apart from the very top letter, and even that was very marginal. So how could I pass every time? By the time it was my turn to read the chart, twenty or more children had already read it in my presence. First with one eye and then with the other. I had heard the chart called out 40 or more times at varying speeds. More than enough repetitions for me to have memorised it.

I don’t recall whether the memorisation was intentional or not, but I do recall that the class consensus was that “failing” wasn’t a desirable outcome, just like failing any other test wasn’t. So everyone including myself did our best to get a “good” pass. I felt good when the adult conducting the test would say something like “Very good, well done Barry”. It was praise I seldom received from anyone other than my parents.

If I had understood how bad my eyesight was, what I was missing and how corrective lenses could change my perception of the world around me, I would have had no qualms about failing the test. Such is life. It took a rather crabby and domineering music teacher to recognise my disability.

Strange as it may seem now, I had no idea that my eyesight was so poor. In fact I had the perception that it was rather good, and I wasn’t the only one. This came about because whenever we travelled along the highways I was able to recognise roadside hoardings/billboards well before either the driver or my fellow passengers. In hindsight, the explanation is simple. I had learnt to recognise all the signs not by the wording or images but by the combination and pattern of colours, which in those long forgotten days (the 1950s) tended to be consistently the same year on year.

As a humorous aside, it wasn’t until after I had my first set of glasses that I discovered that the name of one of the most ubiquitous signs at that time had been been assigned an “alternative” name by the family – an in joke I didn’t discover until I could read the wording myself: Cough Cough and Hammer was actually Gough Gough and Hamer.

I recall the sudden panic, almost terror that I experienced the first time I walked out of the optometrist’s shop wearing my new glasses. As the shop door was closing behind me and I looked ahead, I suddenly and simultaneously took a step backwards into the door and ducked. It literally felt like the world was being thrown at my face. The clarity of the detail of the shop fronts on the opposite of the road felt like they were a mere 6 inches (the NZ switch to metric measurements was still decades away) in front of my face.

It was perhaps the most disorienting experience of my life at that time. I was frozen to the spot. I don’t know how long I stood in that doorway ducking pedestrians and cars that seemed to be inches away, but were in fact yards away.

It seems rather odd now that it never occurred to me that the very obvious solution to my situation was to remove my glasses. An optometrist employee recognised my dilemma and pulled me back inside the shop and removed the glasses. After some quick instructions not to put on my glasses until I was in a small room that I was familiar with and to work up to bigger spaces from there, I was sent on my way.

As much as I wish my new glasses improved my life, they didn’t.

A characteristic of many people on the autism spectrum is the inability to subconsciously filter information arriving via the senses. For example in a crowded room where several conversations are taking place, most people are able to ignore conversations they are not participating in. Other conversations will only reach their conscious awareness when there’s a noticeable change such as in volume, pitch or body language – for example when an argument starts.

Most people have the ability to ignore conversation threads they are not participating in. I can’t. A simple analogy might be the example of being in a group conversation when all participants start addressing you all at the same time, at the same volume but all on different topics. I think the resultant confusion will cause most people to put their hands up and demand that the participants speak one at a time. That’s the situation I face all the time. ALL.THE.TIME!

It turns out that my ability to filter out visual stimuli as that same as my ability to filter out aural stimuli. I can’t. I found the bombardment of new visual information overwhelming and exhausting. Previously trees were largely blurry blobs of green. I could distinguish individual leave only at relatively close distances, so perhaps no more than a hundred or so leaves at any one time. Suddenly I was seeing thousands, hundreds of thousands, perhaps millions of leaves all at once – every one a slightly different size, shape and colour, and all moving independently in the breeze. I didn’t know how to process all this new information.

Suddenly telephone poles and power poles had distinguishable cross arms, insulators of various colours but seemingly on no particular order or pattern. I could see the wires and the patterns they wove overhead. I could actually make out birds sitting on the wires or on rooftops, and even identify the species – something I had previously only been able to do from the pages of a book.

And speaking of books, whereas previously there was only a small area around the word I was reading where the shape of individual words could be distinguished easily (I recognise words by their shape as much as I do by the letters within them), suddenly every letter on the page became individually identifiable, every one of them yelling in unison “Read me NOW!”

Wallpaper patterns now continued right around the room instead of being discernible only in near proximity. On large buildings, all the individual windows could be seen. What’s more they formed regular patterns, and any break to that pattern became a distraction I couldn’t avoid being aware of. The same with pathways. Joins formed patterns that extended into the distance and any spot where the pattern was disturbed jumped out at me. I couldn’t help but notice it.

Never before in my life had been in a situation where I could distinguish the facial features of more than five or six people at one time. Now I could see all the features of everyone in the classroom ALL AT THE SAME TIME. Just too much information to handle. It didn’t help me with facial recognition, but it did allow me to apply the rules I used for identifying individuals at greater distances than previously. Crowds became a confusing collection of

Tiled roofs became a collection of thousands of individual tiles, many of which had individual characteristics I couldn’t help noticing. I could see the corrugations on corrugated iron roofs, and the rows of nails holding them down. Disturbances in the rows (a nail missing, irregularly spaced or out of alignment) shouted out “Look at me!”

Sixty years on and and the same distractions still occur. What I have learnt is how to consciously push them into the background. Over the years I have got better at doing it and it probably takes less effort to do so. There are still times, especially leading up to and during a migraine where I find all the visual information overwhelming. It’s nice to be able to remove my glasses and move into a visually gentler and less harshly chaotic world where I’m not assaulted by detail.

While I mostly appreciate the details I seem to notice when no one else does, there are times when I wish I could simply not notice them in the first place – just like everyone else.


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Day three of fifteen

Our general Elections are to be “officially” held on Saturday, 17th of October. Vote counting will commence after polling places close at 7:00 PM that day. However it has now become standard for voters to be able to vote early. We have been able to cast our vote since Saturday, hence, today being Monday, is day three of the the 15 day period during which we can cast our vote(s).

Although we have nowhere near the voter turnout that Australia has (voting is compulsory there), participation rates of 75% or greater are the norm here. And this year with greater promotion and availability of early voting, it’s likely that the turnout this year will be up on the 2017 elections.

One anomaly that early voting has revealed is the regulation that bans political advertising of any sort on polling day. This necessitates the removing of billboards, party banners etc before midnight on the day before polling day. Considering that voting now extends over two weeks and it’s expected that around 60% of all votes will be cast before polling day, either all political advertising needs to be banned for the entire time the polls are open or the advertising ban needs to be done away with entirely. But banning advertising on only the final day of polling is ludicrous in my view.

On a lighter note, here’s a (highly selective) comparison of last week’s leaders’ debates in NZ and the US. Apart from the obvious gender differences, our political leaders think more highly of each other than do American leaders.

A contrast of styles


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Autism and the Pathology Paradigm

I was late in being diagnosed as being on the autism spectrum – I was 60 years old at the time. At first I tried to prove that I was not autistic, but when that failed I reluctantly accepted that I had a disorder. It took quite a few years to realise that autism is no more a disorder than diversity in sexual orientation or gender identity are.

The following paragraphs from Autism and the Pathology Paradigm summarise my current understanding. You can read the full article by clicking the link in the citation at the foot of the quoted text below.

The choice to frame the minds, bodies, and lives of autistic people (or any other neurological minority group) in terms of pathology does not represent an inevitable and objective scientific conclusion, but is merely a cultural value judgment. Similar pathologizing frameworks have been used time and again to lend an aura of scientific legitimacy to all manner of other bigotry, and to the oppression of women, indigenous peoples, people of color, and queer people, among others. The framing of autism and other minority neurological configurations as disorders or medical conditions begins to lose its aura of scientific authority and “objectivity” when viewed in this historical context – when one remembers, for instance, that homosexuality was classified as a mental disorder in the American Psychiatric Association’s Diagnostic and Statistical Manual of Mental Disorders (DSM) well into the 1970s; or that in the Southern United States, for some years prior to the American Civil War, the desire of slaves to escape from slavery was diagnosed by some white Southern physicians as a medical “disorder” called drapetomania.

At this time, sadly, the pathologization of autistic minds, bodies, and lives still has not been widely recognized – especially not within the academic and professional mainstream – as being yet another manifestation of this all-too-familiar form of institutionalized oppression and othering. The academic and professional discourse on autism, and the miseducation on autism given to each new generation of professionals, remain uncritically mired in the assumptions of the pathology paradigm. And since bad assumptions and unexamined prejudices inevitably become self-reinforcing when mistaken for facts, this entrenchment in the pathology paradigm has kept autism-related theory, praxis, and education stuck in a self-perpetuating cycle of ignorance and bigotry.

Autism and the Pathology Paradigm – NEUROCOSMOPOLITANISM June 23, 2016


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Ways society gaslights and stonewalls autistic people #4

Taken from 50 Ways Society Gaslights and Stonewalls Autistic People. Visit Neuroclastic if you prefer to see all 50 ways in one bite. Otherwise, expect to see one more way in which we are gaslighted each day over a period of seven weeks.

Autistic people, adults and children, are infantilized, gaslighted, and manipulated regularly by society– individuals and institutions.

Gaslighting is a form of psychological manipulation that seeks to sow seeds of doubt in a targeted individual or in members of a targeted group, making them question their own memory, perception, and sanity. Using persistent denial, misdirection, contradiction, and lying, it attempts to destabilize the victim and delegitimize the victim’s belief.

Wikipedia

Note: Some of these may overlap, and some may not fit squarely within the definition of gaslighting; however, all contribute to the way in which society functions like a narcissistic parent with regards to how autistic people are perceived and treated.

4. ABA “therapy”

When ABA therapists claim that ABA therapy for 40 hours is not exhausting for small children because it’s “just play,” when social play can be beyond-exhausting over extended periods of time for autistic kids.

Neuroclastic

Just because Autistic kids often don’t play in a way non-autistic kids do doesn’t mean they’re not playing. And by being forced to “play’ in a way non-autistic kids do – especially social play – it is no longer play. It becomes hard work and eventually beyond endurance. Such treatment of a typical child would be considered abuse, but somehow it’s okay to subject autistic kids to this sort of treatment.


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Ways society gaslights and stonewalls autistic people #3

Taken from 50 Ways Society Gaslights and Stonewalls Autistic People. Visit Neuroclastic if you prefer to see all 50 ways in one bite. Otherwise, expect to see one more way in which we are gaslighted each day over a period of seven weeks.

Autistic people, adults and children, are infantilized, gaslighted, and manipulated regularly by society– individuals and institutions.

Gaslighting is a form of psychological manipulation that seeks to sow seeds of doubt in a targeted individual or in members of a targeted group, making them question their own memory, perception, and sanity. Using persistent denial, misdirection, contradiction, and lying, it attempts to destabilize the victim and delegitimize the victim’s belief.

Wikipedia

Note: Some of these may overlap, and some may not fit squarely within the definition of gaslighting; however, all contribute to the way in which society functions like a narcissistic parent with regards to how autistic people are perceived and treated.

3. Empathy

When they claim to have empathy and that we don’t, but then only measure empathy in NT ways like eye contact or understanding NT behavior.

Neuroclastic