Another Spectrum

Personal ramblings and rants of a somewhat twisted mind


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It sooths me

At times when I sense a migraine is on its way, I often find comfort in music. I’m not sure if it has any effect on the course of an attack, but it keeps me in the presence. By this I mean that my awareness of self does not disappear.

While migraine pain can be debilitating, other effects of an attack can create a surreal sensation where I feel I am no longer within my body, have no conscious control over it, and can only observe a shell which may or may not be able act human-like. It’s being aware of no feelings or emotions. No pain, although I am aware that the shell trembles with pain. No happiness nor sadness nor fear nor joy. Nothing. I’m not even aware of of sensations of light, sound or touch, although the shell reacts in fear or pain to them. The shell even responds to words spoken to it by others. But I, the observer, do not hear the words, only know that the shell is being spoken to, and it slowly, reluctantly tries to make an effort to respond. I’m aware that the shell is confused and disorientated. I feel no pity or compassion, no empathy at all towards the shell. I’m merely a detached and numb observer compelled by some force to hover nearby and observe, while mists of darkness come and go.

In all my 68 years I have never experienced a bad or frightening dream nor a nightmare. Apparently everyone gets them occasionally, or so I’m told. But then, I have no memory of any dreams since my mid teens, certainly not since I finished secondary school. I mentioned this fact when I was undergoing counselling for pain management, and after I had attempted to describe how I sometimes experience the “out of body” described above. The counsellor made the comment that those experiences must be more terrifying than any nightmare.

That puzzled me then as it still does today, as I’m not aware of any emotion at all during these episodes, and at lucid moments like now, I am, at best, ambivalent. I have no feeling or emotion about what happens to me during an attack. I feel no more about the attacks than I do about the fact that some ponds are deeper than others. I’m certainly not conscious of any fear or trepidation about an inevitable attack. Migraines come and go, just as night-times come and go.

While I don’t have dreams I have momentary glimpses that are very dreamlike (from what I remember of dreams), but they have turned out to be actual moments during a severe migraine attack, where the darkness momentarily lifts. For example I remember one dream-like set of scenes where there’s a moment of watching a person walking down a street knowing it’s important for them to be somewhere but not knowing where that is. There’s a flash where a person is sitting on a flower bed with people milling around, and another very short scene where bright lights come and go and a person is wanting to escape. There’s also a picture of a smart phone login screen, and a visually blank scene where somebody or somebodies are asking a person for a name (possibly that person’s name) but the questioning is relentless, not giving the person an opportunity to formulate an answer, let alone give it. There’s a recollection of a breeze and of bells ringing. There’s an awareness of something pressing all around an arm and another where wires are being attached to a torso. These were all actual events during one attack where apparently I was picked up by the police in a somewhat disorientated and confused state and taken to the hospital in a nearby city.

I’m not sure if music really keeps me in the present and out of the fugue-like state, but I can say that as long as I can hear the music, I am aware of the emotions that music can evoke. No, that’s not quite right. I feel the emotions. And I want to hold onto them. Here’s two very different pieces of music that are typical of what keeps the surrealism at bay during the early stages of a migraine attack. They might surprise you.



I find gentle soothing music, tends to draw me into that surreal state, but if I get past the window where that state might take hold, and a more typical migraine evolves, then such music played very softly does help provide some relief from the incessantly throbbing headache.

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To speak or not to speak, that is the question

That dear readers, is a question I’m unable to answer. At (almost) 68 years of age, I still don’t have a clue when it’s my turn to speak. And it’s not for the want of trying.

I often get it wrong even in one on one conversations, but if I’m in a group of two or more other people I’m like a fish out of water when it come to practising  conversational turn taking.

It appears to me that conversations consist of one person leading and others following, adding variable length interjections from time to time  (the nature and frequency of which varies from culture to culture), and then by some mysterious mechanism the lead is transferred to another member of the group.

To a person like me, the ability of others to smoothly navigate a conversation is more than an art or skill. It has the appearance of the participants having some sort of ESP or supernatural ability that is used to negotiate who says what, and when. In fact there was a period in my childhood when I was convinced this was true, which goes a long way to explain my brief fascination of the paranormal at that time.

I’m sure there’s a discipline of science that studies the mechanism by which people negotiate  conversations, but the average person seems to have no idea how they do it. Believe me, I’ve asked. Typical responses are “I’ve never thought about it” (so I gather), “It comes naturally” (no it doesn’t), “It’s instinctive” (no it’s not), “what a stupid question!” (why?), “everyone can do it” (really? I can’t)), “just take your turn” (when is it my turn?), “just observe and you’ll learn” (I’ve been observing for more than 60 years, so how about a hint or clue?).

It was only eight years ago that I learnt there is an explanation for the reason I find conversation so difficult: I discovered I am on the autism spectrum. However being armed with the knowledge why I fail to recognise non-verbal clues (a skill most people don’t realise they possess), does little to help me. If I concentrate exclusively on another’s body movements or tone of voice, I can maybe recognise something that possibly might be non-verbal clues. However, it’s a moot point as the concentration required means the words spoken have gone in one ear and out the other and I’m unable to relate what might have been expressed non-verbally with what the person has said.

When I first learnt I was on the spectrum, my only “knowledge” of autism was through the film Rain Man. I wanted to prove I wasn’t autistic, and tried many online tests in an attempt to prove the experts wrong. I failed totally. One test I tried (on many occasions) is the Reading the Mind in the Eyes test. This test measures one’s ability to identify emotions in others by looking at an area around the eyes and without any other input.

The test consists of looking at a total of 36 pairs of eyes and choosing one of four emotions to match the image. The mean score is roughly 27/36 for women, 25/36 for mean and 22/36 for people who have been identified as having Asperger Syndrome or “High Functioning” Autism. I’ve tried this test on numerous occasions, and the very best I have achieved is 16/36. However most of my results have been close been between 10 and 13, which is only marginally better than one would expect from a tossing a dice to choose an emotion.

So the next time someone appears to be rude by interrupting inappropriately, just consider the possibility that they might struggling, almost to the point of exhaustion, of trying to fit in and having no idea why they don’t. They struggle to fit into your world almost every moment they are awake. It won’t hurt you to try to fit into their world sometimes.

For those who would like to try the test for themselves, there are online versions at http://socialintelligence.labinthewild.org/mite/ and https://www.questionwritertracker.com/quiz/61/Z4MK3TKB.html. The latter requires Adobe Flash, and provides the answers, both of which are good reasons for me to avoid it.


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I am atheism

I am atheism.
I’m visible in your children, but if I can help it, I am invisible to you until it’s too late.
I know where you live.
And guess what? I live there too.
I hover around all of you.
I know no colour barrier, no religion, no morality, no currency.
I speak your language fluently.
And with every voice I take away, I acquire yet another language.
I work very quickly.
I work faster than paediatric aids, cancer, and diabetes combined
And if you’re happily married, I will make sure that your marriage fails.
Your money will fall into my hands, and I will bankrupt you for my own self-gain.
I don’t sleep, so I make sure you don’t either.
I will make it virtually impossible for your family to easily attend a temple, birthday party, or public park without a struggle, without embarrassment, without pain.
You have no cure for me.
Your scientists don’t have the resources, and I relish their desperation. Your neighbours are happier to pretend that I don’t exist—of course, until it’s their child.
I am atheism. I have no interest in right or wrong. I derive great pleasure out of your loneliness.
I will fight to take away your hope. I will plot to rob you of your children and your dreams. I will make sure that every day you wake up you will cry, wondering who will take care of my child after I die?
And the truth is, I am still winning, and you are scared. And you should be.
I am atheism. You ignored me. That was a mistake.
And to atheism I say:
I am a father, a mother, a grandparent, a brother, a sister.
We will spend every waking hour trying to weaken you.
We don’t need sleep because we will not rest until you do.
Family can be much stronger than atheism ever anticipated, and we will not be intimidated by you, nor will the love and strength of my community.
I am a parent riding toward you, and you can push me off this horse time and time again, but I will get up, climb back on, and ride on with the message.
Atheism, you forget who we are. You forget who you are dealing with. You forget the spirit of mothers, and daughters, and fathers and sons.
We are Qatar. We are the United Kingdom. We are the United States. We are China. We are Argentina. We are Russia. We are the Eurpoean Union. We are the United Nations.
We are coming together in all climates. We call on all faiths. We search with technology and voodoo and prayer and herbs and genetic studies and a growing awareness you never anticipated.
We have had challenges, but we are the best when overcoming them. We speak the only language that matters: love for our children.
Our capacity to love is greater than your capacity to overwhelm.
Atheism is naïve. You are alone. We are a community of warriors. We have a voice.
You think because some of our children cannot speak, we cannot hear them? That is atheism’s weakness.
You think that because my child lives behind a wall, I am afraid to knock it down with my bare hands?
You have not properly been introduced to this community of parents and grandparents, of siblings and friends and schoolteachers and therapists and pediatricians and scientists.
Atheism, if you are not scared, you should be.
When you came for my child, you forgot: you came for me.
Atheism, are you listening?


Are you an atheist? Did the message above appal you? I hope it did.

Are you religious? Did the message above appal you? I hope it did.

In some regions of the world, atheists are victims of the attitudes displayed in the transcript above, and many of the religious in those regions would support the sentiments it contains, even if they would be reluctant to voice them openly. Fortunately I live in a region where all forms of religion and non-religion are accepted and valued. Atheism along with the world’s major religions are regarded in a positive light by around 90% of the population.

That’s about all I’m going to say about atheism and religion in this post as it is not really about religion (or lack of it) at all.

Huh? I hear you say? Truly it’s not. The transcript above has been very slightly modified from the original by replacing one word with the word atheism. I could have changed a few additional words the make it more consistent, but I think the message is very clear as it is, and that is that atheism is a very bad thing indeed.

While I concede that the harm manifest in the transcript will not be recognised by some fundamentalists of any religious flavour, I think the rest of us, religious or not, can see it. In some parts of the world, the transcript might be considered hate speech and the speakers sanctioned accordingly.

Most people like me will recognise the transcript, and know what word originally stood in place of atheism. We know it is hateful and harmful. People like me experience the result of the demonising of our person-hood that voices such as the ones in the original transcript cause – every day.

Can you imagine what it would be like to be subjected to not just disapproval or hatred, but intense compliance-based training to ensure every action, every deed, every word that you utter or write makes you indistinguishable from others in a devout religious community? Many like me don’t need to imagine. We’ve lived it.

Although the analogy of atheism is not perfect, if it’s made you uncomfortable or angry,  or given you food for thought, then I’ve succeeded. If you don’t know what the original word is in the transcript that I replaced with atheism, I’ll help you out. It’s another word starting with “A“. The transcript is of an advertisement put out by an organisation that supposedly has our best interests at heart, but fails to consult us or allow us to take a part in its activities, and makes others fear and hate what we are. No matter where we are in the world, we cannot escape the attitudes expressed in the transcript.

The original word in the transcript that I replaced with atheism is autism, and the advertisement is I Am Autism put out by Autism Speaks. I’m not going to put a link to the video, but if you want to see it in all its horror, search YouTube for “I Am Autism commercial by Autism Speaks”.

It does not speak for me!


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30th anniversary of Needle exchange program

One of the country’s most successful public health initiatives, the needle exchange program has become a network of hundreds of outlets. The first exchange outlets began operating in 1987 following legislation earlier that year that legalised the practice. The early adoption of the exchange program is one reason why AIDS/HIV is low within the intravenous drug using community in Aotearoa New Zealand compared to similar countries elsewhere. Thousands of lives have been saved by the program.
//players.brightcove.net/963482464001/HJiGOMree_default/index.html?videoId=5682891395001


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Stupidity knows no bounds

No, I’m not referring to Trump, although he could be used as another example. I’m referring to myself. I’m kicking myself in hindsight and calling myself a bloody idiot.

So what did I do that was stupid? I drove to a local fast food outlet to pick up dinner for the wife and myself on Friday evening. No, I’m not referring to the consumption of fast food occasionally as stupid, nor to the fact that I drove instead of walking. I chose to leave home when it was potentially unsafe for me to do so, and I chose to drive at a time when I posed a danger to myself and others.

We all know that alcohol impairs one’s ability to drive safely, and most of us won’t drive after drinking, either because we don’t want to put ourselves and others in harm’s way, or because of the repercussions that will be heaped on us if we get caught.

(Drink Dive ad from 2007)

What many people aren’t aware of is that a migraine can seriously affect one’s ability to drive safely. Even fewer people realise that driving can be impaired up to three days before a migraine headache occurs.

Not every migraineur is impaired this way, but for some, cognition is impaired before the headache stage: during the prodrome and aura stages. I fall into that category.

Migraine goes through four possible stages: prodrome; aura; attack/headache; postdrome. Not every stage occurs in every migraine attack. For those unfamiliar with the stages, a very brief description follows:

Prodrome: Begins hours to days before the attack stage. Experienced by about 60% of sufferers. Symptoms can include: mood changes such as depression, irritability or euphoria; food cravings; sensitivity to light , sounds and smells; fatigue and yawning; frequent urination; muscle tightness.

Aura: Typically lasts for up to an hour, but in rare case can last considerably longer. Experienced by one in 5 migraineurs. Symptoms can include: visual disturbances such as zigzag lines, stars/strips/spots, scintillation, blind spots, and tunnel vision; Numbness; loss of motor skills; confusion; Alice in Wonderland syndrome; loss of spacial perception; vertigo; memory loss; visual and auditory illusions; aphaia; disorientation.

Headache: Typically lasts hours to days. Occasionally migraines can occur without this stage. Symptoms include: severe throbbing headache, sensitivity to light, sound and smells; nausea; vomiting.

Postdrome: Typically lasts hours to days. Symptoms include a “hungover” feeling; symptoms similar to the prodrome stage.

They may appear to be 4 distinct stages, but in my case, the transitions can take hours and there’s considerable overlap of symptoms. I’m unable to distinguish between the prodrome and aura stages unless the visual clues kick in, and sometimes I recognise the prodrome and aura stages only in hindsight. And that is where my stupidity arose. The clues that I was in the prodrome stage of a migraine were staring me in the face, but I failed to notice them.

I am very mindful of the potential hazards that I might be confronted with during a migraine, and I tend to err on the side of caution. While I can accept a higher level of risk for myself that results from my migraine symptoms, I’m not prepared to place that risk on others. Before I undertake any activity I normally take some time to consider the possibility that a migraine might be just around the corner, or even if a silent migraine has already arrived. Except Friday.

I drove while visually impaired and initially didn’t realise that I was. To make matters worse, when I realised that my vision was impaired, I drove home – an executive decision I should not have made.

So how did all this play out? The first clue surfaced on Wednesday. We decided to have sausages for lunch and I offered to drive to the supermarket to pick some up. That was the first clue. “How so?” you may ask. Well, I’ll tell you.

We have no idea what are the triggers for my migraines are, except for one: the red tone lighting frequently found over the meat section in supermarkets. It takes less than a minute under those lights before I start to feel light headed and within a few minutes I am completely disoriented to the point where I can’t find my way to the checkouts or exit. In fact I exhibit symptoms that can be confused with a stroke. When we first discovered this phenomenon, I first I thought it might have been a psychological reaction to seeing all the meat, but when we realised that it was related to specific shops, but not others, we eventually were able to pin it down to the lighting.

These days I avoid supermarket meat sections like the plague, and in stores where the meat section runs along the side of the shop at right angles to the isles, I avoid going to the ends of the isles, and keep my eyes diverted away from the meat. So what possessed me to even offer to pick up the sausages? And why didn’t the wife pick up on it? She knows what happens  when the lighting triggers an attack even better than I do. She has to manage me while I’m kind of spaced out and not totally aware of the situation. Clue missed.

At the supermarket I had already picked up the sausages before it dawned on me what I done. To say that I was concerned is an understatement. I was by myself and if the lighting triggered an attack, I could be in an ambulance and on the way to hospital with no choice in the matter. It’s happened before. Several times.

What I should have done when I realised my mistake was phone the wife or another nearby family member about what had happened and for them to come and get me. I didn’t. I hastily paid for my purchases and sat in the car waiting for the worst to happen. That was a stupid thing to do. If an attack had come on, I might have decided to drive, but I would not have had a clue where I was going. I wouldn’t have known where home was. Clue missed

I waited for nearly ten minutes before concluding I was lucky on this occasion, so I drove home. It was there that I realised that I had made a poor choice of sausages. One pack was Angus beef. No problem there, but the other pack was venison and herbs. To the wife, venison equals Bambi. Because of her sensitivity over this, I never bring home food containing venison. Clue missed.

At 2 am on Thursday morning I got up and made myself a couple of sandwiches. I haven’t done that since my twenties. I felt really hungry. I never feel hungry except before the onset of a migraine. It never occurred to me that this might be one of those occasions. Clue missed.

Later on Thursday I drove into town on some errands. I drove for the fun of it. Heavy acceleration and braking. Feeling the tyres grip under fast cornering. It was exhilarating. I don’t drive like that. Well not for the last 45 years. Clue missed.

I chatted with every one I met and enjoyed it. I have no idea if it was reciprocated. I didn’t care. Normally I converse as little as possible with persons I’m unfamiliar with. Experience has taught me to be cautious as I’m completely unable to read body language and only the most basic of facial expressions. I usually can’t read between the lines. I’ve learnt the hard way to carefully measure what I say and how I say it. But not on Thursday. Clue missed.

I went to bed four hours earlier than usual. I was unable to stay awake. Clue missed

In the very early hours of Friday morning I got up and made myself some sandwiches. Second night in a row. Clue missed again.

On Friday I worked on a number of Websites, but I frequently forgot HTML and CSS coding I use regularly and had to resort to cheat-sheets. I frequently found myself editing the wrong files. Clues missed.

Late Friday afternoon, I found that words were disappearing off the screen, or lines of code started undulating in front of my eyes. I knew I had to stop. I put it down to eye strain. Clue missed.

I this point I should have been fully aware that I was well into the aura stage. The sunlight was very bright, the shadows very dark. The face of the wall clock was blank. We discussed what to have for dinner. I kept tripping over words. I Couldn’t think of the words Turkish kebabs. We “agreed” on KFC. Clues missed.

There’s a deep dip where our driveway meets the street and I normally cross it at an angle to avoid the front air dam scraping the road. Except then. Oops. Clue missed.

I drove to the kebab shop. Wrong place. Headed for KFC. Clue missed.

At KFC the illuminated menu above the counter had pictures but most of the words kept shimmering in and out of view. And I couldn’t remember what we had “agreed” to purchase. It was then that it finally dawned on me that I was in the aura stage of a migraine and that I should get home as soon as possible. Decided to telephone the wife to confirm what I was supposed to order. No phone. I never go out without my phone. Decided to order what the wife probably wanted, No problem ordering the Hot Wings, but I could not think of the name for a Zinger Burger. Finally I resorted to describing what it was.

By the time the order was ready, everything before my eyes was shimmering, and my peripheral vision was all but gone. I should not have driven home. I could no longer see the speedo and other dashboard instruments and still it didn’t occur to me that I should not drive. I can remember thinking I must hurry home before it got worse. So I did hurry. How stupid can one get?

If someone had stepped out into the road in front of me, (a) I probably wouldn’t have seen them, (b) I would probably not have known how to avoid them if I did see them, and (c) even if I did, my reaction time would have been too slow. As it was I didn’t see a vehicle approaching from my right at one intersection until I started to move into it. In fact I’m very lucky to have made it back home in one piece.

Today I’ve been re-evaluating all the procedures the wife and I have developed over the last decade or so to prevent exactly what happened yesterday. It had been working very well up until now. I still don’t understand why so many clues were missed. I am very angry at myself and to a lesser extent my wife. Was it a one off slip of our guard, or have we become complacent because it has been working so well? Or are we both are loosing the ability to recognise the signs.

I really don’t want to hand in the keys for driving just yet. My mother drove until she was ninety and I’d like to think I can do the same. But yesterday has given me a scare.

 


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Autism is nothing to fear

Over on the silent wave, Liana makes a plea not to demonise autism. Get to know us. What makes us different is nothing to fear. Look, I am surrounded by non-autistic people, and while I might never understand their way of seeing the world, I see no reason to be afraid of them, or their condition. The same applies in reverse. The only thing to fear is the public perception of autism, not autism itself.

I live in the US, where the predominant feeling surrounding the autism spectrum is fear. Parents decline to vaccinate their children because because they’re afraid they’ll wind up autistic. Parents, I hear you, on a certain level. Some children really do react badly to vaccines. I’ve heard too many stories, even from people I know–reasonable […]

via Autism is nothing to fear. Are you scared of me? — the silent wave


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Theory of mind(reading)

Theory of Mind is a concept that autism “experts” have come up with, but as is amply illustrated in Laina’s post, one must ask whether it’s the autistic or the expert that lacks it.

the silent wave

Realizing that you’re autistic when you’re an adult means you get to do a lot of searching. This takes multiple forms – soul-searching, Google-searching, memory-searching, and often, people-searching (the journey of finding others just like you).

In my internet searching, I tripped over a staggering number of tidbits that clicked my entire world into place. It was like being given the instruction manual to my brain, and having it translated into my native language.

There was one particular concept, however, that did not click in line quite so easily: Theory of Mind.

What the hell was that, this “Theory of Mind” of which so many speak? The term stoically hides any further information.

Many a mention, nary a definition. At least, not a definition that helped much.

At first, my Inner Smartass came out. ”Well duh–of course we have minds. That’s not a theory!”

Har-har. 😉

It took me…

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Sensory Overload

I’m sometimes asked what it feels like to be an Aspie. I don’t know, as it feels perfectly normal to me. I’ve been one for almost 68 years, and will remain so for the rest of my life. However, I sometimes wonder what it would be like to not being an Aspie, then shudder at the thought. You’re all so strange!

However there is one non-autistic trait I wish I did have, and that is the ability to filter incoming stimuli. This is simply because I am required to inhabit a world dominated by people who take sensory gating for granted. Most people on the autism spectrum are prone to sensory overload to some degree. I certainly am, and I think I might be able to explain it in a way that make sense for those of you who don’t experience it.

email_icon_crystalLet’s imagine that your job is to respond to all email sent to your office. If it takes on average about ten minutes to attend to each email, then over an eight hour working day you can process about fifty emails. So the forty or so that arrive on a typical day is a walk in the park. Sure, there will be times when they arrive in quick succession and some may require more time than others to process, and you may end up with five or perhaps ten in your inbox awaiting attention. You simply prioritise the messages and in quick order you’re back to an empty or near empty inbox.. However…

What you don’t see is all messages that have been sent to the office email address. As well as the forty messages you see, there are another 360 that have been caught by the the Spam filter on the office mail server. What would happen if the filter suddenly stopped working? Instead of processing forty emails per day, you’re now faced with processing 400 per day. That’s an average processing time of one minute and 12 seconds per message if you want to leave the office at your usual time. Sure, some of the messages will obviously be Spam, but a great many will not be so obvious at a cursory glance, and will take a few minutes to check their validity. Are you beginning to feel the pressure?

There’s one other bit of information that will really put the heat on. Your mailbox has developed a software fault and can hold, at most, twenty messages. Any more than that and one of two possibilities happens. Either, the new message pushes one of the existing messages out of the inbox where it simply disappears, or, it merges the new message with one of the existing messages, resulting in absolute gibberish. It’s not possible to predict which message will be pushed out or merged, nor which of the two possibilities will occur. So when your inbox contains nineteen messages and another thirty arrive within one minute, you know you’re in deep doo-doo.

Your sensory gating works in a way similar to the Spam filter. Anything that is irrelevant is stopped at the gate. You only have to deal with the important stuff. There are moments during the day when your “inbox” gets kind of full as you struggle to cope with two kids that won’t stop bickering, while a third has just taken a tumble off the shed roof and possibly has concussion and a broken arm. Meanwhile the dog has just thrown up on the new carpet in the lounge, and you discover the phone’s been disconnected because your spouse forgot to pay the bill last month. But on the whole you cope quite well, knowing that your “inbox” can hold hundreds or thousands of messages at any time.

On the other hand, I’m struggling with no Spam filter and a restricted “inbox”. My partner and I go to a restaurant for dinner. She’s wearing a broach that catches the light every few seconds. Each time it does, I receive a new message in my “inbox”. I ask her to remove the broach. She refuses, The candle on our table and the table on the left have tea light candles. Each time they flicker, I get a new email I blow out the candle on our table. My partner comments that that was very romantic deed. Is she being sarcastic? How does one know?

The table on the right has one of those confounded fake candles with an electric flame. It flickers incessantly. Each time it does, I get a new message. In the background, there’s piped music with a vocal track. Each time I hear recognisable word, another message is sent. At the table behind me there’s at least two conversations going on. Each time there’s a recognisable phrase, I get a new message, The same thing is occurring with the tables to our left and right. Each click of utensils on crockery anywhere in the room creates a new message. And then there’s the constant toing and froing of patrons and serving staff, sending multiple messages each time they cross the floor. And I haven’t even included the stimuli I am receiving from the food or the many messages that result from contact between my skin and the suit I’m wearing. One of the waitresses is wearing shoes that squeak (am I the only person hearing that?) and my partner thinks I’m being distracted by the waitress. She’s right, but the reason for the distraction is most definitely not what she thinks. It’s those darned shoes. The right one makes a different sound to the left. The result is a sort of sqeeeksquick, squeeeksqick, and I get another email with each squick. I sense my partner is not happy with my distractedness, but to what degree I have no idea. My inbox is now overflowing, and I have no clue as to how many of the messages containing her half of the conversation have been lost, but I’m sure some of those messages have merged with the conversations going on around us. How else could “imdemnity clause” occur in the same sentence  as “salted caramel fudge for desert”? Someone is wearing perfume and it’s making my head spin, not to mention my stomach churn. Each spin and churn results in another message. And we’re still deciding what to order from the menu…

All I want to do is run. But stay I must.

I’m wired to process fifty messages a day – just like you. But whereas you only have to process forty on a normal day, I’m faced with processing four hundred! Unlike you, I wasn’t given a Spam filter.

 


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Epidemic or pandemic?

Up until the 1980s Allism was unknown. Since then it has spread rapidly and now it’s acknowledged that perhaps as many as 49 out of 50 people might be allistic. It affects women more than men. With such a high prevalence, it can’t be too long before this condition is recognised as a pandemic.

People with allism are likely to make decisions based on emotions, either their own or those of another person, rather than based on sensory input and rational thought. When it comes to group decision making, the more allistics involved, the more difficult it is to rationalise the outcome. Two very recent examples of this have been the Brexit result and the election of Donald Trump but it can happen with smaller groups such as seen at sports events too. This is due to the mob effect of allism

The Allistic Mob Effect

Special problems occur where a group of allistic people interact with each other. Emotional states, once introduced to the group, get reflected back and forth between allistic people, in a feedback loop. With few or no non-allistic people to provide a damping effect, it is possible for the emotions passing among the group to become significantly amplified. Any change of mood can spread rapidly through the group, like a highly contagious disease, affecting all the allistic people as one.

This leads to a mob effect, where the entire group of allistic people experience emotions that are unusually strong and are the same as what the rest of the group is experiencing. The group acts as one emotionally unbalanced and highly suggestible mind, and may perform acts that no individual member of the group would desire when not affected by the mob.

A Background To Allism

Allism is a debilitating neurological condition which adversely affects emotional stability, sensory perception, self-awareness, attention, and many other areas of mental function. It is a developmental abnormality, arising from congenital neurological defects that affect infantile mental development. The effects are lifelong, and there is no cure. However, despite the wide-ranging effects, sufferers superficially appear normal, and can partially compensate for their deficiencies to lead nearly normal lives.

Because of the superficial normality, allism has only been recently identified as a pathological condition. It has turned out not to be a rare condition; indeed, it is beginning to be recognised as alarmingly prevalent. Yet public knowledge is slow to catch on to these developments. There has been little research so far, and allism is still almost unknown to the general public, and even to mental health professionals.

Because of the lack of common recognition, allism is rarely diagnosed. Indeed, most sufferers are not merely undiagnosed but may be completely unaware of their condition. As understanding of allism improves, it is expected that many people’s eccentricities will turn out to be related to allism.

Combating Allism

In order to combat the allism epidemic, it is vital that parents watch out for the signs. Some common signs are:

  • Playing mindless “pretend” games
  • Overwhelming desire to be touched or held
  • No desire to be alone
  • Talks excessively about feelings
  • No “special interests”
  • No interest in routine
  • No repetitive behaviours
  • Little to no response to strong lights, smells, noises, tastes, or textures
  • Doesn’t repeat words or phrases
  • Fixation on eye contact

If your children show any of the above symptoms, please get them evaluated so that they can be forced to assimilate receive treatment earlier.


In case anyone fails to realise the above post is an attempt at satire, “allism” and allistic” are terms used by the autistic community when referring to non-autistic people and the unempathetic manner in which they treat autistic individuals, and the autistic community.

Thanks to Allism Speaks and Cure Allism Now for parts of the above post.


2 Comments

Gaslighting

Although I had a supportive family that considered me “quirky”, “different” or “socially clumsy” and valued me as a person, the same can not be said for the rest of society, which often gave me the impression that I was wrong, broken, or backward. I am very grateful that those who are important to me have always accepted and valued me as I am. As a consequence I never found myself in a position of not liking myself. Even so, discovering I was on the autism spectrum felt like I had found the “on switch” to allowing me to be fully me. Many people on the spectrum are not as fortunate as I have been. Is it any wonder that so many people on the autism spectrum suffer from depression and other mental/emotional disorders?

Being an undiagnosed autistic has many challenges. When you compare your reactions to things with other people’s, you feel like you’re getting it wrong. When other people take things in their stride, and your brain feels like it’s expanding inside your skull to the point you can’t think, then you feel like you’re overreacting. And […]

via Gaslighting — Autism and expectations